Bone Cancer Research Trust

Sarcoma Awareness Month is here! Please show your support for our #EveryPatientMatters campaign to help raise vital funds and awareness for bone sarcomas (primary bone cancers) this July. There are so many ways to get involved: - Educate yourself on bone sarcomas 📚 - Share our posts and educate others 🌍 - Donate towards our life-saving work 🧪 - Share your story with us ✍️ - Access our new video resources 🎥 - Attend our free webinar for healthcare professionals 💻 You can find out more by visiting: https://ow.ly/FnCy50SiGiA #SarcomaAwarenessMonth #HealthCareProfessionals #FreeWebinar #MedicalWebinar #ContinuingEducation #UntilTheresACure

A huge shoutout to all at Praetura Ventures who completed this fantastic challenge and raised an amazing £11k in support of bone cancer patients and their families 🧡

We were thrilled to hear that our fantastic #TeamBones fundraiser, Sanjay Gandhi, won the Special Fundraising Award at the AGENTS GIVING Fundraising Champion Awards 2024! 🏆 Sanjay and his #OrangeArmy started fundraising last year following Sanjay's chordoma diagnosis and have gone on to raise over £15,000 towards our vital work 👏 Congratulations to Sanjay and all the team for your well deserved win! Thank you for your tireless support and determination to raise funds and awareness for bone cancer patients 🧡 #SpecialFundraisingAwards #ProudFundraiser #Fundraising #UntilTheresACure

“Once I recovered from surgery and proton beam therapy, I had to build up strength both physically and mentally. It took me longer than expected.” – Lori After experiencing pain in her back which worsened over time, Lori was eventually diagnosed with spinal chordoma in July 2019. Her treatment involved two 11-hour surgeries followed by proton beam therapy (PBT). When Lori returned home from treatment with no nurses, no routine and time to think, her mental health deteriorated. Lori shares her story as part of our #EveryPatientMatters campaign this July to show why research into the psychological impact of primary bone cancer is so important 🧡 Read more: https://ow.ly/t6Mc50SJmBE #SarcomaAwarenessMonth #Awareness #Support #UntilTheresACure

We understand the challenges that you have faced, and continue to encounter in the years beyond your diagnosis and treatment for primary bone cancer or tumour. To support you in navigating these challenges, we have launched a private Facebook group for long-term survivors, where you can share your experiences of survivorship, find support, and connect with others who truly understand 🧡 Join the group this Sarcoma Awareness Month at: https://ow.ly/vMbu50SJQhC #SarcomaAwarenessMonth #EveryPatientMatters #Support #UntilTheresACure

The Support & Information Service will be closed during these times in the summer holidays 🧡 - Friday 26th and Monday 29th July - Friday 9th August - Thursday 22nd and Friday 23rd August - Thursday 29th and Friday 30th August For any non-urgent enquiries please continue to email support@bcrt.org.uk. For any urgent support please contact your medical team or call NHS 111. #BoneCancerSupport

NEW research grant awarded! 📋 We are proud to be funding a new study that will explore the psychological impact of spinal sarcomas. It is hoped that the project, led by Dr Victoria Williamson at the University of Bath and Jeremy Reynolds & Gerard Mawhinney at Oxford University Hospitals NHS Foundation Trust, will pave the way for better mental health support 🧡 Learn more this July: https://ow.ly/xum750SIzWf #SarcomaAwarenessMonth #EveryPatientMatters #Research #MentalHealth #Support #UntilTheresACure

'Close to the Bone' was shot and curated by photographer Caroline Seymour as part of a unique collaboration with sarcoma patients and consultant orthopaedic surgeon Professor Tom Cosker 📸 This free exhibition does not shy away from the harsh reality of a bone cancer diagnosis, even venturing into the operating theatre to show the intricacies of surgical treatment 🩺 You can view this moving collection of photographs at The Royal College of Surgeons of England this summer. - 15th August – 7th September 📅 - 10:00 – 17:00 Book your tickets here: https://ow.ly/40tr50SHUWP Close to the Bone is proudly supported by the Bone Cancer Research Trust and Sarcoma UK. #PhotographyWithPurpose #BoneCancerAwareness #Awareness #UntilTheresACure

This Sarcoma Awareness Month, we’re celebrating an emotional reunion. David, a chordoma patient, was put back in touch with the optician who started his life-saving journey thanks to the remarkable efforts of the BBC 🧡 After experiencing double vision in January 2020, David visited his local Specsavers for an eye exam and was urged to visit A&E the same day for further investigation. With the quick action and diligence of his optician, doctors discovered a 23mm tumour near David’s cranial nerve, and his treatment started quickly. David’s story is a reminder of the important role that healthcare professionals play in the diagnostic journey of primary bone cancer patients, and we are committed to working with opticians to raise awareness of the red-flag symptoms so that more patients survive and thrive. Watch the heartwarming BBC clip by visiting: https://ow.ly/O3zE50SHr9I #SarcomaAwarenessMonth #EveryPatientMatters #Awareness #UntilTheresACure

The Bone Cancer Research Trust is proud to be joining forces with Chordoma Foundation and Chordoma UK to co-host a stimulating day of research updates, discussions and networking opportunities for researchers and clinicians from across the international chordoma community. Register here: https://ow.ly/LaaT50SBl5H #BoneCancer #Research #UntilTheresACure