Lipedema Foundation

Lipedema Foundation awardee Scott Cameron and colleagues have uncovered key differences in platelet gene expression between patients with Lipedema, lymphedema, and obesity. These findings reveal how unique biological pathways in platelets may contribute to the increased risk of thrombosis (blood clots) in these conditions. Understanding more about these changes could offer insights into the biological mechanisms underlying platelet activation and its association with thrombosis in Lipedema. Read the article here: bit.ly/3LmYhlm

We are proud to share that LF CEO Jonathan Kartt, along with LF awardees Vincenza Cifarelli, PhD, and Philipp E. Scherer, PhD, presented at the Lipedema panel during the 2024 International Congress on Obesity in Sao Paulo, Brazil. The session was attended by over 700 people, with participants standing, sitting on the floor, and streaming on their devices in the hallway. This strong turnout underscores the growing interest and commitment to advancing Lipedema research and patient care. We are honored to have contributed to this important discussion. Learn more about the event: bit.ly/3VYPuLl

We have new Lipedema treatment tools! This page, designed to empower patients and healthcare professionals with comprehensive and accessible treatment options, now includes even more options and insights. There are various care and Lipedema treatment options available that can effectively manage symptoms and improve the quality of life for patients. Since Lipedema affects each individual differently, these resources aim to provide a wide range of treatment ideas that can be customized to meet patients' specific needs. Visit our treatment page today to explore these valuable tools: bit.ly/40kwpna

Finding the right therapist can make a significant difference in managing Lipedema. Our LF Provider Directory is here to help patients, caregivers, and healthcare providers locate rehabilitative therapy professionals who specialize in treating Lipedema. 🔹 Steps to Use the Directory Effectively: 1. Access the Directory: Best viewed on a desktop or laptop. 2. Combine Resources: Use it alongside our Patient Self-Advocacy Guide for evaluating and preparing for appointments. 3. Search by Area: Locate therapists near you who have the necessary training and experience. 4. Stay Updated: Encourage providers to sign up for the LF Newsletter for future expansions. Help us reach our goal of getting at least 300 providers added to the directory this year by sharing this resource with others. As our Provider Directory grows, so does the support for our community! bit.ly/49Oa9GS

We are pleased to present this video in our LF Provider Directory video series, which explains how healthcare professionals can leverage this directory to enhance collaboration and referrals within the Lipedema community. Improved collaboration leads to better patient outcomes. Visit our website to learn more: bit.ly/49Oa9GS

Navigating Lipedema treatment options is crucial for healthcare professionals. Differentiating between conservative and invasive methods can guide effective patient care. Conservative treatments: These non-invasive methods include lifestyle changes and working with rehabilitative therapy professionals. Invasive treatments: Surgical options, such as liposuction, may be right for some patients, but carry higher risks. Both approaches aim to alleviate symptoms and enhance quality of life and are often used simultaneously. Ensure your patients are well-informed and consult with specialists to determine the best treatment plans. 🔗 For more detailed information, visit: bit.ly/3VL7j0o

We extend our heartfelt thanks to everyone who supported us during Lipedema Awareness Month. Your engagement and contributions are vital to our mission. Although the official awareness month has ended, our efforts to spread awareness and make an impact continue. In case you missed it, explore our patient stories and more information on our Lipedema Awareness Month landing page. Together, we can continue to advance the understanding and recognition of Lipedema. bit.ly/3V1nciR

🔬 The Lipedema Foundation is pleased to announce the findings of a new study by Lundanes et al. that investigates the impact of a low-carbohydrate ketogenic diet on women with Lipedema. This randomized control trial, involving 35 participants in each group, highlights several potential benefits, including reduced pain intensity, improved quality of life, and weight loss. These results are promising and suggest that a ketogenic diet might be beneficial for managing Lipedema symptoms. However, further research is necessary to validate these findings and explore the underlying mechanisms. For more detailed insights, you can access the full study here: bit.ly/4bwTsk1

As Lipedema Awareness Month draws to a close, we extend our heartfelt thanks to everyone who engaged with our campaign. Your dedication to sharing resources, sharing your personal stories and raising awareness has been invaluable. Together, we will continue to advance the understanding and recognition of Lipedema. #LivingFullyWithLipedema #LipedemaAwarenessMonth

For Lipedema Awareness Month, our campaign theme is "Living Fully with Lipedema." Our Research Roadmap outlines crucial objectives to advance research and support patients in living fully. Over the past decade, Lipedema awareness has significantly increased. Together, let's overcome the remaining barriers: https://lnkd.in/eP5WjFU2