How does big data play a role in real-world evidence? ADVI Health expert and senior advisor, Michael Kolodziej, MD, expands on the modern era of big data in #healthcare, the adoption of electronic medical records streamlining documentation, and more in the next part of his "Decoding Health Care" series. Read more: https://lnkd.in/gagFKWB9
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Lead Consultant | Senior Scientific Strategist | Pharmaco-Epidemiologist | Research Methodologist | Integrated Evidence Generation Specialist
As we navigate the dynamic landscape of #Healthcare and #Research, it's imperative to cast a spotlight on a pivotal aspect - #PatientEngagement. The era of patient-centric research is upon us, and its significance cannot be overstated. 🔍 Why is patient engagement critical in research? 1️⃣ Diverse perspectives and experience: Patients bring a wealth of diverse insights that can reshape research questions, methodologies, and outcomes. By actively involving them, we ensure a broader understanding of the real-world impact of our work. 2️⃣ Enhanced relevance at implementation: Patient engagement ensures that research aligns with the actual needs and priorities of those it aims to benefit. This not only enhances the relevance of our studies but also increases the likelihood of successful implementation of findings. 3️⃣ Empowerment and trust: Involving patients fosters a sense of empowerment and builds trust between researchers and the communities they serve. This trust is the bedrock upon which meaningful, sustainable healthcare advances are built. 4️⃣ Ethics: There is an ethical and moral imperative to acknowledge and respect the autonomy of individuals in matters that directly impact their health. Patient engagement promotes ethical research practices, ensuring that the rights and well-being of participants are at the forefront. 🚀 How can we boost patient engagement? 1️⃣ Accessibility: Ensure that opportunities are accessible, breaking down barriers to patient and public involvement in research. 2️⃣ Communication: Foster open and transparent communication channels, building enduring collaborative relationships. 3️⃣ Technology: Leverage innovative technologies e.g., to facilitate remote engagement, regardless of geographical constraints. 4️⃣ There is a growing body of research dedicated to answering this question and I am committed to following, (and leading where I can), the progress made in methodology research towards making patient engagement not just a checkbox but a fundamental ethos guiding our research endeavors. Together, we can usher in a new era where the patient's voice is not just heard but actively shapes the future of healthcare. #PatientEngagement #HealthcareResearch #Collaboration #HealthEquity #EmpowerPatients #PatientAndPublicInvolvement #PPI Your thoughts and insights are welcome! Let's spark a conversation that leads to positive change. 💬✨
New month, new Spotlight from The Evidence Base® - #PatientEngagement Hear from Mark McClellan (Duke-Margolis Center for Health Policy), Jeff Trotter, Rich Gliklich (OM1, Inc.), Jennifer Bright, Catherine Bottomley, Jason Spangler (The Innovation and Value Initiative (IVI)), Bertalan Németh (Syreon Research Institute), Henrik Vincentz, Yvette Venable, Ulf Staginnus (Blueprint Medicines) and the GetReal Institute. #patientvoice #rwe #realworldevidence #rwd #realworlddata #hta #healthequity
Spotlight: Patient Engagement
evidencebaseonline.com
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Reflecting on this compelling piece by Ella Balasa, I'm inspired to share our approach to patient engagement at Datacubed Health. We're moving beyond theoretical discussions to actionable strategies, integrating patient engagement into tools like ePRO and eCOA. Our goal? To transform patient engagement from a buzzword into a measurable, impactful practice. It's not just about being patient-centric; it's about understanding and showcasing the real impact on patient outcomes and business profitability. We're committed to transparency and practicality, demonstrating the tangible benefits of patient insights. This is an invitation to our industry peers: let's collaborate to make patient engagement a cornerstone of clinical research, benefiting all stakeholders. Join us in this crucial shift towards a more inclusive, effective, and patient-centered healthcare system. https://lnkd.in/eZWjnq8M #patientengagement #clinicalleader #clinicalresearch #patientcentricity
Patient Engagement Needs More Benefit Analysis, Fewer Theoretical Conversations
clinicalleader.com
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In the context of Decentralized Clinical Trials, ePRO and eCOA take centre stage.🔥 These digital tools are the driving force behind the collection, organization, and evaluation of patient health data throughout the treatment journey. But what are the differences and main features of both? #clinicaltrials #clinicalresearch #decentralizedclinicaltrials #ePRO #patientcentricity
The Distinct Roles of eCOA and ePRO in Decentralized Clinical Trials - Trial Online by Replior
https://www.replior.com
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The significance and impact of #RealWorldData (RWD) on the #healthcare industry is undeniable. Understanding #RWD sources and how they synthesize into Real World Evidence (#RWE), highlights the need for efficient and safe data retrieval processes. This need, nevertheless, also comes with its challenges. Briya is transforming these challenges into opportunities for #lifescience and #healthcare providers. Learn more in our new blog: https://lnkd.in/drR7JV-M
The Rise of Real-World Evidence: Transforming Healthcare Through Patient Data - Briya
https://briya.com
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Check out Lifebit's latest blog to uncover valuable insights on how real-world data is shaping clinical research and trials. Discover the importance of real-world evidence in optimising healthcare treatments and driving patient-centric care. Learn how advancements in data analysis approaches are transforming clinical trial approvals and healthcare delivery. Looking to delve deeper into the topic? We've got you covered: https://bit.ly/3VeSuEz #HealthcareInnovation #RealWorldData #Lifebit
Unlocking insights: how real world data is shaping clinical research and trials
lifebit.ai
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Health Affairs blog: Do real-world data and tech advancements suffice for #CGT outcomes tracking and new payment models? If not, what's needed? Our article explores what coordinated actions must be taken to accelerate outcomes tracking and enable payment innovation https://lnkd.in/e5nzWdnw
Better Outcomes Tracking: A First Step In Improving Access To New Treatments | Health Affairs Forefront
healthaffairs.org
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In the intricate dance of clinical research, 'efficacy' leads the way. 💡 It's the measure of a treatment's potential in perfect conditions. But how does it fare in the real world? That's where effectiveness steps in. Our latest blog post breaks down these crucial concepts. Perfect read for healthcare professionals and enthusiasts alike! #ClinicalEfficacy #DrugDevelopment #HealthcareIndustry
Efficacy - Clinical Research explained
https://viares.com
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📚Discover the transformative impact of real world data (RWD) on clinical research! Our comprehensive guide takes an in-depth look at the advantages, challenges, and evolving trends surrounding RWD/RWE. From enhancing medical research to revolutionizing patient care, explore how RWD is shaping the future of healthcare innovation: https://bit.ly/3UhSTUG #RealWorldData #MedicalResearch #InnovativeHealthcare #Lifebit
The complete guide to using real world data and evidence in clinical trials and research
lifebit.ai
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Our paper was selected as an Editor's Choice in Value in Health. The use of utilization management strategies to limit access to high-cost first-line treatments, such as step therapy, is a topic of debate. Employing cost-effectiveness analysis to compare a new first-line treatment with an existing one could inform such policies. However, this either-or, one-size-fits-all approach might not adequately address the complexities involved in policy implementation: e.g., treatment effect heterogeneity, administrative burden, and diverse patient preferences. So we explored whether the cost-effectiveness analysis framework could be refined to better reflect these complexities, thereby offering more nuanced policy guidance. https://lnkd.in/exxtTXxv
Evaluating Policies of Expanding Versus Restricting First-Line Treatment Choices: A Cost-Effectiveness Analysis Framework [Editor's Choice]
ispor.org
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Clinical research is a critical component of #healthcare, driving innovation and improving patient care. Looking ahead to 2024, the industry will continue to advance and expand rapidly. Technology integration is expected to be leveraged in conducting and interpreting #clinicalstudies. As a CRO committed to advancing care through operational excellence and innovation, ARG remains engaged with the future of clinical research to discover and implement effective methods for improving global health. Read our 2024 Predictions here: https://lnkd.in/eeGfXHTF
Clinical Research: What to Expect in 2024 - Atlantic Research Group
https://atlanticresearchgroup.com
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