Novartis US’ Post

Every year, Rare Disease Day is celebrated on the last day in February, recognizing the millions of people globally who are living with a rare disease. Did you know that less than 6% of the global population live with a rare disease, amounting to over 300 million people? Organizations such as National Organization for Rare Disorders, Inc. (NORD) and Rare Disease Day help support, advocate and spread awareness for the diseases and the people living with them. Help us show support today by #showyourstripes if you or someone you love lives with a rare disease! #healthcare #rarediseaseday2024 #rarediseaseawareness #patientadvocacy #healthcareheroes #rarediseaseday

"Today is Rare Disease Day, a time to shine a light on the challenges faced by individuals living with rare diseases. Let's come together to raise awareness, show support, and advocate for better treatments and research. Every voice matters, and every person deserves access to quality care and understanding. We stand in solidarity with the rare disease community. 💪💛 #RareDiseaseDay #ShowYourRare #SupportAndAdvocate"

Rare diseases may be rare on the individual disease level, but they affect millions of people worldwide. Many of these conditions are often misdiagnosed, diagnosed late or remain undiagnosed. As we commemorate Rare Disease Awareness Day, let us stand side by side with the rare disease community. By raising awareness and fostering a society that embraces diversity and inclusivity, we can live in a world where rare diseases are met with understanding and equitable access to care. #DataClinGroup #RareDiseaseAwareness #RareDiseaseDay #RareDiseaseDay2024 #InvisibleButNotForgotten #HopeAndCompassion #UniteForRareDiseases #EmpoweringRareDiseaseCommunity #ShineALightOnRareDiseases #RareDiseaseResearch #SupportAndAdvocacy #TogetherWeCan

#RareDiseaseDay is right around the corner. Ambit’s commitment to the rare disease community is core to who we are. Over the next few weeks, we will share a few reasons why. #whyambit #whyraredisease #rarediseaseday2024

Thanks to a parent's input, we learned of a problem entering more than one child in the family with Batten disease. The survey has now been fixed! If you have more than one child with CLN2 Batten disease, please complete a survey for each of them. If you have an incomplete survey, please log in and finish it for us. Your input means everything to us and our researchers. TOMORROW, Friday, March 29, is the last day to complete this survey. 🔗 https://ow.ly/R5KH50QZ2yI #BattenDisease #Survey #CLN2

In our latest Industry Insights article, Michelle Conway from CRD Consulting Ltd asks 'Living well with a rare disease: are we really supporting our community to achieve this?' Michelle Conway discusses whether our current approach to improving the lives of those living with #RareDiseases requires us to think beyond the current rare disease policies to develop a whole-of-government approach. Read Michelle's article here: https://bit.ly/45Wwot2

Shining a light on Paget's Disease: Together, let's raise awareness, inspire understanding, and support those on their journey. Knowledge is power, and together we can make a difference. 💙🌐 #PagetsAwareness #knowledgeispower

🔍🦴 Today is Paget's Awareness Day, and we're shining a light on this lesser-known condition affecting bones. Let's foster understanding, offer support, and promote education about Paget's Disease. Knowledge is power, and together we can make a difference for those facing this challenge. 💙💡 Share this post to spread awareness! #PagetsDay #BoneHealth #RaiseAwareness #usascripthelpers

You probably know someone with SCD or with the SCD trait. However, do you really understand the challenges associated with the disease? September is #sicklecelldisease awareness month! Learn about the disease & how you can support! #repost #SCDawarenessmonth

#WorldLungCancerDay is observed every year on August 1 since 2012 when it was first marked to raise awareness around the deadly disease, encourage more research on it and break the stigma around the disease. #CancerResearch #lungcancer #CancerTreatment #WorldLungCancerDay2023